I’m open sourcing my health logs and data in my journey to recover from Long COVID/ME in the hope that it will help others fighting the same fight.

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Interventions - all interventions, drugs, supplements I’m considering or have tried

How to get more Paxlovid - how to get more than a 30-day course of Paxlovid… with a little help from your friends (or family!)

Long COVID Testing - all labs I've done with CPT codes and pricing

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• Age: 38
• Twitter: https://x.com/liamsLCjourney
• Location: Lower East Side of Manhattan, New York City
• Background: Former semi-professional athlete, classic extremely healthy lifestyle pre-COVID (lifting 3x/week, whole foods diet, no drugs/non-drinker)

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Current Plan (March 2026)

As of January 17, I am currently in a severe, 24/7 bedbound crash which started after GI issues from an adverse reaction to microdosed tirzepatide.

Due to repeated issues with PEM and few other symptoms, I think it is time to admit that I do not have “Long COVID” and rather have ME which was caused by COVID. This leaves me with the uncomfortable truth that I suffer from an uncurable condition, but I will continue to fight.

Goal: get out of bed.

Interventions:

Low dose Abilify - 0.15mg/day starting March 12, seems to be raising my baseline, phone and laptop tolerance has increased, feeling less physical “weight”

Fixing my gut microbiome - Biomesight analysis revealed near-zero Bifidobacterium (0.028%) and critically low Akkermansia (0.067%), elevated H2S producers, and Proteobacteria bloom.

Started Seed DS-01 (currently titrating from 1 to 2 capsules), Pendulum Metabolic Daily, GOS prebiotic, Zinc Carnosine (mucosal barrier repair/leaky gut support), Hydroxocobalamin B12 (neutralizes H2S systemically), and 2-week Bismuth subsalicylate course (suppresses H2S-producing bacteria).

Testing

• Biomesights re-test at 45 or 60 days
• Deeper T cell and EBV testing
• Organic acid testing </aside>

Vaccination and infection timeline

• First COVID infection: November 2021 (likely Delta variant)
• Reinfection and “official” Long COVID onset: Early May 2022 (Probably BA.2 or possibly BA.2.12.1 variant - mild infection, recovered in a week, then symptoms began, likely after lifting weights to failure)
• Vaccines: Moderna (April-May 2021), Moderna booster (Dec 2021), Pfizer booster (Nov 2022)
  • Have not gotten vaccines since then for fear of making my condition worse

Symptom pattern

I’ve had a unique episodic pattern that is different from typical Long COVID:

• Periodic, often severe PEM crashes with complete 100% recovery between episodes - improvement is nearly immediate, not gradual: full health returns overnight
  • July 2022 - April 2023: 9 months completely symptom-free
  • August 2023 - May 2025: 1.5 years completely symptom-free
• Triggers: Exercise intolerance, infections, sometimes no clear trigger
• General pattern: Worse upon waking and after naps, best in evenings. Symptoms disappear after sleep deprivation (waking before 6 AM)

Complete episode history